Skip To The Main Content
Autism Spectrum Disorder
Special Topics Portal:

Autism Spectrum Disorder

Explore this Topic:

The Data Resource Center is working in partnership with Autism Speaks to provide the Autism Spectrum Disorder (ASD) community with timely access to data and resources to support data-driven advocacy and policy.

This portal provides easy access to data on the health and wellbeing of children and families with ASD from several national surveys.  Exploring our chartbook on the health and wellbeing of children and families with ASD is an excellent way to skim this data quickly.

In addition to helping families, advocates, policymakers, and researchers learn more about the experiences of families with ASD, this portal is intended to help anyone advocate for issues related to ASD. This portal allows individuals to explore how others are putting ASD data into action, and access a variety of other resources for families, advocates, and researchers.

Fast-track your access to ASD data resources:

Highlighted Data & Resources

An ASD Chartbook: Experience Matters - A View into the Health and Wellbeing of US Children and Families with Autism Spectrum Disorder 
Drawing on four national surveys (the National Survey of Children's Health, the National Survey of Children with Special Healthcare Needs, the National Health Interview Survey, and the Pathways Survey), this chartbook presents a first-ever, comprehensive summary of key findings from data reported by families with ASD.
Using data from the 2009/10 NS-CSHCN and 2011/12 NSCH, the Data Resource Center developed this three-page data brief on children with special health care needs (CSHCN) with Autism Spectrum Disorders (ASD). The brief describes characteristics of CSHCN who currently experience an ASD, the impact on families of having a CSHCN with ASD, as well as how health system performance and contextual factors from the home, school and neighborhood environments may affect CSHCN with ASD.
The Well-Visit Planner (WVP) is a tool designed by the CAHMI to assist parents in preparing for their young child's (age 0-6 years) well-child check-ups so that they can get the most out of the visit by thinking ahead of time about their questions, concerns, and priorities. Given that families with children with ASD may have many questions and distinct needs, this is an important tool with many helpful possibilities.

Data In Action! Autism Spectrum Disorder