Skip To The Main Content
 
Explore this Topic:

ASD Resources for Families, Advocates, & Researchers


The Data Resource Center (DRC) is an important resource for families of children with ASD, as well as advocates and researchers interested in the health and wellbeing of children and families with ASD.
To provide additional support, the DRC has compiled an ongoing list of other resources which may be of help to families, advocates, and researchers.

Please contact us at info@cahmi.org to highlight any additional resources on this page.

Jump to:


Resources for families


Autism Speaks
Autism Speaks is the world's leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism, increasing awareness of autism spectrum disorders, and advocating for the needs of individuals with autism and their families.
  • Autism Speaks’ Family Resource Guide
    This guide provides information on early intervention services, school services, financial and legal services, support services, health services, and many more for each state in the US.

Autism Action Partnership
The Autism Action partnership aims to improve the quality of life of persons on the Autism Spectrum and their families through education, advocacy, and support, enabling them to be an integral part of the community.

Autism Consortium
The Autism Consortium advances understanding of autism by encouraging collaboration between families, clinicians, and researchers.

Autism NOW Center
The Autism NOW Center provides high quality resources and information in core areas across the lifespan to individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, caregivers, and professional in the field. Focus areas include: early detection, early intervention, and early education; transition from high school into early adulthood; community based employment; advocacy for families and self-advocates; community inclusion; aging issues; policy; implementation of health care reform, including long-term care services and support; family and sibling support; and networking in local, state, and national arenas.

AutismWeb’s Parent’s Guide to ASD
The AutismWeb is a community of parents interested in autism, Pervasive Developmental Disorder (PDD) and Asperger Syndrome. Provides resources concerning fields from appropriate diets to effective teaching methods.

Center for Autism and Related Disorders
The Center for Autism and Related Disorders is an organization at Kennedy Krieger which offers clinical research and conducts research to serve children and families with autism.

Family Voices
Family Voices is a national nonprofit, family-led organization promoting quality healthcare for all children and youth, particularly those with special health care needs.

Interacting with Autism
Interacting with Autism is a video-based organization that teaches and educates people about what it is like to live with autism.

Organization for Autism Research
Led by parents and grandparents of children and adults on the autism spectrum, OAR seeks to use applied science to answer questions that parents, families, individuals with autism, teachers and caregivers confront daily.

Well Visit Planner
Families with ASD may have a lot to discuss with their child’s provider at their child’s regular well-visit. The Well Visit Planner tool helps families pick their priorities for their child’s visit, and provides a “visit planner” to support families in discussing these priorities with their child’s provider.


Resources for advocates


Autism National Committee
The Autism National Committee is the only autism advocacy organization dedicated to "Social Justice for All Citizens with Autism" through a shared vision and a commitment to positive approaches.

Autism Speaks
Autism Speaks is the world's leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism, increasing awareness of autism spectrum disorders, and advocating for the needs of individuals with autism and their families.

Autism Society of America
The Autism Society of America increases awareness of autism, advocates for services for individuals with autism, and provides research about new treatment options.

Autistic Self Advocacy Network
The Autistic Self Advocacy Network is a grassroots organization that ensures that the voices of people with autism are heard via advocacy in the political sphere.


Resources for researchers


Association for Science in Autism Treatment
The Association for Science in Autism Treatment provides resources and information in its newsletters, Media Watch initiative, website, and other programs about different methods for autism treatment and their efficacy.

AGRE (Autism Genetic Resource Exchange)
The Autism Genetic Resource Exchange (AGRE) is a repository of biomaterials and phenotypic and genotypic data to aid research on autism spectrum disorders. Biomaterials and data on families with members on the autism spectrum are made available for analysis by members of the scientific community worldwide.


Autism Speaks

Autism Speaks is the world's leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism, increasing awareness of autism spectrum disorders, and advocating for the needs of individuals with autism and their families.
  • Autism Treatment Network
    The Autism Treatment Network (ATN) is a collaboration of Autism Speaks and some of the finest children’s hospitals and academic institutions in North America, specializing in multi-disciplinary medical care for children with autism. They work to develop evidence-based protocols and standards of care for many of the most challenging medical conditions surrounding autism today. Researchers can access patient data on more than 6,900 children and teens with ASD.

Center for Autism and Related Disorders
CARD is an organization at Kennedy Krieger Institute that offers conducts clinical research to serve children and families with autism.

Interactive Autism Network
The Interactive Autism Network is a comprehensive online library centering on ASD research.

International Society for Autism Research
The International Society for Autism Research (INSAR) is a scientific and professional organization devoted to advancing knowledge about autism spectrum disorders. The Society holds an annual scientific meeting - the International Meeting for Autism Research (IMFAR).

National Autism Association
The National Autism Association seeks to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential. This includes conducting ASD research and supporting approved products.