| Prevalence of CSHCN | 2001 % | 2005/06 % |
| Percent of children who have special health care needs | 12.8 | 13.9 |
| Age 0-5 years | 7.8 | 8.8 |
| Age 6-11 years | 14.6 | 16.0 |
| Age 12-17 years | 15.8 | 16.8 |
| Male | 15.0 | 16.1 |
| Female | 10.5 | 11.6 |
| 0-99% FPL | 13.6 | 14.0 |
| 100-199% FPL | 13.6 | 14.0 |
| 200-399% FPL | 12.8 | 13.5 |
| 400% FPL or more | 13.6 | 14.0 |
| Non-Hispanic | 15.0 | 15.0 |
| White | 14.2 | 15.5 |
| Black | 13.0 | 15.0 |
| Asian | 4.4 | 6.3 |
| American Indian/Alaskan Native | 16.6 | 14.5 |
| Native Hawaiian/Pacific Islander | 9.6 | 11.5 |
| Multiple Races | 15.1 | 17.9 |
| Hispanic | 8.5 | 8.3 |
| Spanish Language Household | N/A | 4.6 |
| English Language Household | N/A | 13.1 |
|
| National Chartbook Indicators | | 2001 % | 2005/06 % |
| CSHCN whose conditions affect their activities usually, always, or a great deal |  | 23.2 | 24.0 |
| CSHCN with 11 or more days of school absences due to illness | | 15.8 | 14.3 |
| CSHCN without insurance at some point in past year | | 11.6 | 8.8 |
| CSHCN without insurance at time of survey | | 5.2 | 3.5 |
| Currently insured CSHCN whose insurance is inadequate | | 33.8 | 33.1 |
| CSHCN with any unmet need for specific health care services | | 17.7 | 16.1 |
| CSHCN with any unmet need for family support services | | 5.1 | 4.9 |
| CSHCN needing a referral who have difficulty getting it |  | 21.9 | 21.1 |
| CSHCN without a usual source of care when sick (or who rely on the emergency room) | | 9.3 | 5.7 |
| CSHCN without any personal doctor or nurse | | 11.0 | 6.5 |
| CSHCN without family-centered care | | 33.2 | 34.4 |
| CSHCN whose families pay $1,000 or more out of pocket in medical expenses per year for the child | | 11.2 | 20.0 |
| CSHCN whose conditions cause financial problems for the family | | 20.9 | 18.1 |
| CSHCN whose families spend 11 or more hours per week providing or coordinating child's health care | | 13.5 | 9.7 |
| CSHCN whose conditions cause family members to cut back or stop working | | 29.8 | 23.8 |
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| MCHB Core Outcomes | | 2001 % | 2005/06 % |
| CSHCN whose families are partners in decision making at all levels, and who are satisfied with the services they receive | | 57.5 | 57.4 |
| CSHCN who receive coordinated, ongoing, comprehensive care within a medical home | | 52.6 | 47.1 |
| CSHCN whose families have adequate private and/or public insurance to pay for the services they need | | 59.6 | 62.0 |
| CSHCN who are screened early and continuously for special health care needs | | .... | 63.8 |
| CSHCN whose services are organized in ways that families can use them easily | | 74.3 | 89.1 |
| Youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence | | 5.8 | 41.2 |
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