CSHCN Profiles

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2009/10 National Survey of Children with Special Health Care Needs

Nationwide Profile

Estimated Number of CSHCN: 11,203,616

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Click on any row of data in the table below to view detailed results by age, race/ethnicity, household income and other subgroups.

Prevalence of CSHCN	Nation %
CSHCN Prevalence
Percent of children who have special health care needs	15.1
CSHCN Prevalence by Age
Age 0-5 years	9.3
Age 6-11 years	17.7
Age 12-17 years	18.4
CSHCN Prevalence by Sex
Male	17.4
Female	12.7
CSHCN Prevalence by Poverty Level
0-99% FPL	16.0
100-199% FPL	15.4
200-399% FPL	14.5
400% FPL or more	14.7
CSHCN Prevalence by Hispanic Origin and Race
Non-Hispanic	16.2
White	16.3
Black	17.5
Other	13.6
Hispanic	11.2
Spanish Language Household	8.2
English Language Household	14.4

National Indicators	Nation %
Child Health
CSHCN whose conditions affect their activities usually, always, or a great deal	27.1
CSHCN with 11 or more days of school absences due to illness	15.5
Health Insurance Coverage
CSHCN without insurance at some point in past year	9.3
CSHCN without insurance at time of survey	3.5
Currently insured CSHCN whose insurance is inadequate	34.3
Access to Care
CSHCN with any unmet need for specific health care services	23.6
CSHCN with any unmet need for family support services	7.2
CSHCN needing a referral who have difficulty getting it	23.4
CSHCN without a usual source of care when sick (or who rely on the emergency room)	9.5
CSHCN without any personal doctor or nurse	6.9
Family Centered Care
CSHCN without family-centered care	35.4
Impact on Family
CSHCN whose families pay $1,000 or more out of pocket in medical expenses per year for the child	22.1
CSHCN whose conditions cause financial problems for the family	21.6
CSHCN whose families spend 11 or more hours per week providing or coordinating child's health care	13.1
CSHCN whose conditions cause family members to cut back or stop working	25.0

MCHB Core Outcomes	Nation %
CSHCN whose families are partners in shared decision-making for child's optimal health	70.3
CSHCN who receive coordinated, ongoing, comprehensive care within a medical home	43.0
CSHCN whose families have adequate private and/or public insurance to pay for the services they need	60.6
CSHCN who are screened early and continuously for special health care needs	78.6
CSHCN who can easily access community based services	65.1
Youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence	40.0

Estimates based on sample sizes too small to meet standards for reliability or precision. The relative standard error is greater than or equal to 30%.

Prevalence data only available for States where this minority group makes up at least 5% of total population of children in the State.

With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children with Special Health Care Needs was conducted by the Centers for Disease Control and Prevention’s National Center for Health Statistics. CAHMI is responsible for the analyses, interpretations, presentations and conclusions included on this site.

Suggested citation format: “[State name] Report from the 2009/10 National Survey of Children with Special Health Care Needs.” NS-CSHCN 2009/10. Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from www.childhealthdata.org.