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Frequently Asked Questions

Below are frequently asked questions (FAQs) about the Data Resource Center (DRC) in general, or that pertain to all surveys available on this website. For survey-specific FAQs, please click on one of the following links.

For questions about the Pathways survey (follow-up to NS-CSHCN), click here to view the Pathways survey FAQ page.

For questions about the NHIS, click here to view the NHIS FAQ page.

For questions about the NHIS CAM Supplement, click here to view the NHIS CAM Supplement FAQ page.

For questions about the NSCH, click here to view the NSCH FAQ page.

For questions about the NS-CSHCN, click here to view the NS-CSHCN FAQ page.

 

About the DRC

What is the Data Resource Center (DRC)?

Who sponsors the DRC?

 

Using the DRC website

How can I get NSCH survey results?

Are all survey data displayed on the DRC website?

Where can I find resources for the NSCH?

Are the NSCH data files available to the public?

What can I expect when I request a DRC Indicator dataset?

Can I get a list of publications that have used the surveys hosted on the DRC?

Is there a standard format for citing information from the DRC website in an academic paper?

How do I receive assistance if I am having a hard time interpreting output from the surveys?

Is it possible to access data for two subgroups of children at the same time in the Interactive Data Query?

What internet browsers are supported by the DRC website?

How can I link to your site?

Definitions and Measure Development

How can I find out which questions were used to develop a specific child health indicator?

Where can I find out how derived variables in DRC data sets were conceptualized and how they are constructed in SAS or SPSS?

What criteria are used to create the race/ethnicity categories?

Why isn’t there full data on this website for American Indian, Alaska Native, or Native Hawaiian/Pacific Islander children?

I see reference to HRSA regions in the NSCH DRC Interactive Data Query. What is a HRSA region?

How are unknown or missing values handled in the DRC interactive data query results?

What does it mean that the data from these surveys are “parent-reported”? Is parent-reported data valid?

 

DRC Indicator Datasets

What is included in the NSCH data sets?

Do the data sets include local-level data?

How are DRC Indicator data sets different from the U.S. Census Bureau data files?

What if I have additional questions?

 

About the DRC

What is the Data Resource Center (DRC)?  [return to top]

The purpose of the Data Resource Center for Child and Adolescent Health (DRC) is to advance the effective use of public data on the health and health-related services for children, youth, and families in the United States. The DRC does this by providing hands-on access to national, state, and regional data findings from the National Survey of Children’s Health (NSCH), as well as offering technical assistance on the interpretation and use of these data by policymakers, program leaders, advocates, and researchers in order to inform and advance key child and youth health goals. The DRC prioritizes assisting Title V Maternal and Child Health Services Block Grant recipients, and partners, in the effective implementation of the Title V Block Grant Program by providing key technical support, interactive resources, and necessary training. To learn more visit our About the DRC page.

Who sponsors the DRC?  [return to top]

Our Sponsor

The DRC is a project of the Child and Adolescent Health Measurement Initiative (CAHMI) and is supported by Cooperative Agreement U59MC27866, titled National Maternal and Child Health Data Resource Initiative, from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB).

Data Partners

Starting in 2016, the U.S. Census Bureau collects the data for the NSCH on behalf of HRSA MCHB. Measures derived from this survey are developed collaboratively through a partnership between HRSA’s MCHB, a Technical Expert Panel on which the DRC is a member, the Census Bureau, and other federal partners who provide sponsorship for the NSCH. Several measures still included in the NSCH were created previously through the collaborative efforts of MCHB, CAHMI and the National Center for Health Statistics.

Dissemination Partners

The DRC has longstanding collaborative relationships with Family Voices and many other organizations that work to transform healthcare and improve health for children and their families nationwide. Through this collaboration, CAHMI and the DRC work to promote data partnerships with family advocates, topic experts, and community leaders. The data collected through the NSCH are collected from families, and through these partnerships, we work to ensure that the data can be used by families in order to promote quality care and positive health outcomes for children.

 

Using the DRC website

How can I get NSCH survey results?  [return to top]

The DRC website lets you interactively browse NSCH data through the “Interactive Data Query,” and provides point-and-click access to NSCH survey results in tabular and graphical formats at the national and state level by child and family demographic characteristics and other subgroups (where sample size permits). We also provide fully coded NSCH datasets and resources to help with analyzing the data on your own.

Are all survey data displayed on the DRC website?  [return to top]

The DRC does not display all data from the survey due to data precision restrictions. The DRC Interactive Data Query alerts data users when estimates are suppressed or flagged as imprecise using the criteria set by HRSA MCHB.

Which data are suppressed? 
If the unweighted denominator < 30, the estimate is considered too unreliable for presentation.
Which data receive an “interpret with caution” flag?           
The DRC flags certain data that should be interpreted with caution if:

  • The absolute confidence interval (Cl) width > 20%, or
  • The relative Cl width > 120% (1.2 times the estimate), or
  • The estimate is 0% or 100%

To learn more about the data suppression and data display criteria click here. 

Where can I find resources for the NSCH?  [return to top]

Detailed information about the NSCH - including Fast Facts, the Survey Sampling and Administration Diagram, and the Guide to Topics and Questions - are available on the DRC website. The public use data file for the 2016 NSCH, along with the FAQs, Methodology Report, and other relevant background information and documentation, is located on the HRSA MCHB website and the U.S. Census Bureau website.

Are the NSCH data files available to the public?  [return to top]

Yes. Fully labeled data sets are available from the DRC at no cost to Title V leaders and partners and other federal, state, or local government agencies, academic and not-for-profit researchers, educators, students, and advocates. All NSCH survey questions and data shown on the DRC website, including constructed National Performance and Outcome Measures, child and family health measures, and demographic variables, are available in SAS, SPSS, and Stata datasets by registering on the Request a Dataset page.

Users will be able to access their unique page with downloadable datasets and/or codebooks through a one-time registration after signing a Dataset Request Form and Data Use Agreement.

In addition, the original, non-coded, SAS and Stata versions of the 2016 NSCH can be found at the U.S. Census Bureau’s website. These data files include the household screener file, child-level topical file, and poverty implicate file..

What can I expect when I request a DRC Indicator dataset?  [return to top]

Once we have received a request form and signed Data Use Agreement from you, we will send you an e-mail with information on how to access your account and download a compressed folder containing the dataset and supplementary information. This process typically takes less than 2 business days. Using your assigned username and password, you will be able to download a zip file containing the dataset, codebook, and other relevant documentation. You can access your “My Requests” page anytime to make a request for other datasets and/or codebooks.

Can I get a list of publications that have used the surveys hosted on the DRC?  [return to top]

The Articles page on our website is your best resource for a list of current publications. There you will find dozens of articles that have used the surveys. We do our best to keep the articles section of our website updated; however, you should also search PubMed for additional articles.

Is there a standard format for citing information from the DRC website in an academic paper?  [return to top]

The DRC is funded by a Cooperative Agreement with HRSA MCHB to create the Interactive Data Query tool, as well as the key indicator data set and codebook. Each data results or state data snapshot page on our website has a citation at the bottom of the results. Please use this context-specific citation information whenever possible. If a citation is not included on a screen then please use the following more general citation:

Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. [Title of the document] [Insert name and year of survey]. Retrieved [mm/dd/yy] from [www.childhealthdata.org].

To cite a 2016 NSCH indicator dataset from the DRC: 

Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health. (2018). 2016 National Survey of Children’s Health (NSCH) [(SPSS/SAS/Stata/CSV) Indicator Data Set]. Health Resources and Services Administration, Maternal and Child Health Bureau in collaboration with the U.S. Census Bureau. Retrieved [mm/dd/yy] from www.childhealthdata.org

How do I receive assistance if I am having a hard time interpreting output from the surveys?  [return to top]

The DRC makes it easy to receive technical assistance for questions related to our website or interpreting data from the national surveys hosted here. Just follow the link to the Ask Us a Question page and send us an email. Once we receive your question, we will review it within 48 hours. Due to limited capacity, we prioritize questions submitted by Title V leaders, families, and family organizations. As our team is able, our goal is to provide quick replies to all questions and requests for information. The DRC staff makes every effort to respond to your email within 2 to 3 business days.

Is it possible to access data for two subgroups of children at the same time in the Interactive Data Query?  [return to top]

The DRC interactive query features only one subgroup at the same time at the national and state level. You will need to request a dataset to do statistical analysis for more than one subgroup at the same time. Keep in mind that due to sample size, the response for some specific demographic variables or specific questions might not be reliable because of an inflated standard error value.

What internet browsers are supported by the DRC website?  [return to top]

The DRC supports Microsoft Internet Explorer, Google Chrome, Mozilla Firefox, and Safari. If you do not have any of these browsers, visit the Microsoft Internet Explorer site, Google Chrome site, the Mozilla Firefox site, or the Safari site to download a free copy. The DRC is also accessible via mobile phone.

How can I link to your site?  [return to top]

The DRC encourages users to link to our site. Please use the URL http://www.childhealthdata.org.  We suggest the following text to describe our work:
“The Data Resource Center for Child and Adolescent Health provides online access to survey data from the National Survey of Children’s Health. The DRC site allows users to compare state, regional, and nationwide results, and to access additional resources and personalized assistance for interpreting and reporting findings.”

 

Definitions and Measure Development

How can I find out which questions were used to develop a specific child health indicator?  [return to top]

Every child health indicator in the DRC Interactive Data Query has a pop-up box that displays pertinent information about the variable, including a list of the survey questions used to construct it. The pop-up box for a specific indicator or question can be viewed by clicking on the information icon next to questions and indicators on the browsing and results pages. This information can also be found in the survey codebook, which is available along with the dataset by request through the DRC Request the Dataset page.

Where can I find out how derived variables in DRC data sets were conceptualized and how they are constructed in SAS or SPSS?  [return to top]

The DRC has published documentation for derived variables in the DRC Indicator data sets and the DRC Interactive Data Query in the form of SPSS and SAS codebooks.  Download codebooks for the NSCH datasets by requesting through the Request a Dataset page.

What criteria are used to create the race/ethnicity categories?  [return to top]

The child race/ethnicity groups available on this website are standard categories constructed according to guidelines established by the Office of Management and Budget (OMB) and used in U.S. Department of Health and Human Services surveys. The NSCH asks a series of questions about the sample child’s race and Hispanic or Latino ethnicity. Respondents are allowed to answer affirmatively to one or more categories of race. There are a number of ways that the responses to these questions can be used to create different groupings of race and/or ethnicity. Children are assigned to one of five distinct categories according to the following criteria:

  • HISPANIC: Children identified as having Hispanic or Latino ethnicity, regardless of reported race.
  • WHITE: Non-Hispanic children with White as the only reported race category.
  • BLACK: Non-Hispanic children with Black as the only reported race category.
  • ASIAN: Non-Hispanic children with Asian as the only reported race category.
  • OTHER: Non-Hispanic children identified by a single one of the following categories: American Indian, Alaska Native, or Native Hawaiian/Pacific Islander, or multi-racial.

Please note that in the 2016 NSCH, state sample sizes for Black, Asian, and Hispanic Origin are too small (n<30) in some states and should not be used to derive population estimates in the following states:

  • Black: AK, AZ, CO, HI, ID, IA, KS, ME, MT, NE, NH, NM, ND, OR, SD, UT, VT, WV, WI, WY
  • Asian: AL, AR, ID, IN, LA, ME, MS, MO, MT, NE, NM, ND, OK, SC, SD, TN, UT, VT, WV, WY
  • Hispanic Origin: AL, ME, MS, VT, WY

Additional information about how data on children’s race/ethnicity data were collected and processed for the NSCH is available on the U.S. Census Bureau website in the Methodology Report and the HRSA MCHB website containing NSCH FAQs.

Why isn’t there full data on this website for American Indian, Alaska Native, or Native Hawaiian/Pacific Islander children?  [return to top]

The Census Bureau does not recommend using state or national population estimates for these race categories because the sample size is too small. It is important to note that when individual-level data for one or more of these race categories is not available in the publicly released survey data files for a specific state, it does not mean that the data were not collected. Researchers interested in analyzing the non-publicly released data for these minority groups by state can submit a proposal to the U.S. Census Bureau. The U.S. Census Bureau provides access to detailed data files in a secure environment that does not jeopardize the confidentiality of respondents. For more information, click here.

Additional information about how children’s race/ethnicity data were collected and processed for the NSCH is available on the U.S. Census Bureau website in the Methodology Report and the HRSA MCHB website containing NSCH FAQs.

I see references to HRSA regions in the NSCH DRC Interactive Data Query. What is a HRSA region?  [return to top]

The term “HRSA region” refers to the ten standard federal regions through which the Health Resources and Services Administration (HRSA) organizes and conducts its administrative activities. The 50 States, the District of Columbia, and the U.S. territories are each assigned to a specific HRSA region.

HRSA is an agency of the U.S. Department of Health and Human Services. It is the primary federal agency for improving access to healthcare services for people who are uninsured, isolated, or medically vulnerable.

The ten standard federal regions were established by OMB Circular A-105, "Standard Federal Regions," in April 1974. The standard federal regions used by HRSA are:
• REGION I: CT, ME, MA, NH, RI, VT
• REGION II: NJ, NY, Puerto Rico, Virgin Islands
• REGION III: DE, MD, PA, VA, WV
• REGION IV: AL, FL, GA, KY, MS, NC, SC, TN
• REGION V: IL, IN, MI, MN, OH, WI
• REGION VI: AR, LA, NM, TX, OK
• REGION VII: IA, KS, MO, NE
• REGION VIII: CO, MT, ND, SD, UT, WY
• REGION IX: AZ, CA, HI, NV, American Samoa, Federated States of Micronesia, Guam, Marshall Islands, Northern Mariana Islands, Palau
• REGION X: AK, ID, OR, WA

How are unknown or missing values handled in the DRC Interactive Data Query results?  [return to top]

DRC Indicator data sets for the NSCH survey include all content in the public use file plus Title V National Performance Measures, National Outcome Measures, and dozens of other Key Child Health Indicator variables. These measures were developed collaboratively by the HRSA MCHB, CAHMI’s DRC, the U.S. Census Bureau, and a national technical expert panel of child health researchers and policymakers.

What does it mean that the data from these surveys are “parent-reported’? Is parent-reported data valid?  [return to top]

“Parent-reported” data means that the surveys are completed by a parent, guardian or other adult familiar with the child and the child’s health. This differs from electronic medical record data or other clinical data reported by hospitals, clinicians or administrators. Data from parents, who know their children better than anyone, are critical to having a full understanding of the broad spectrum of child health. Below are some resources comparing parent-reported data with other data sources.

Patients providing the answers: narrowing the gap in data quality for emergency care.
Quality and Safe Health Care, May 2010

The value of patient self-report for disease surveillance.
J Am Med Inform Assoc., Nov-Dec 2007

Parents as partners in obtaining the medication history.
J Am Med Inform Assoc, May-June 2005

Patients as experts: a collaborative performance support system.
Proc AMIA Symp, 1999.

Parents as direct contributors to the medical record: validation of their electronic input.
Ann Emerg Med., April 2000.

Data quality and the electronic medical record: a role for direct parental data entry.
Proc AMIA Symp, 1999.
 

 

DRC Indicator Data Sets

What is included in the NSCH data sets?  [return to top]

DRC Indicator data sets for the NSCH survey include all content in the public use file plus Title V National Performance Measures, National Outcome Measures, and dozens of other Key Child Health Indicator variables. These measures were developed collaboratively by the HRSA MCHB, CAHMI’s DRC, the U.S. Census Bureau, and a national technical expert panel of child health researchers and policymakers.

Do the data sets include local-level data?  [return to top]

DRC Indicator data sets provide state and national level data. The NSCH is designed to be representative at the national, regional, and state level only; however, it is possible to analyze zip code data on site at the U.S. Census Bureau. Interested researchers must first complete the process to receive Special Sworn Status to be able to gain access to the data files on site. Go to https://ask.census.gov/support/case to submit your request to begin this process. 

Synthetic estimates are also a way in which you can obtain local estimates using national data. A synthetic estimate is a prevalence estimate for a local area that is calculated by using descriptive or demographic data for local areas combined with state prevalence values. It is similar in concept to an indirect adjustment. A local estimate is most likely to differ from a state estimate if the demographic distribution at the local area differs from that of the state and the prevalence of the indicator varies by the same demographic factor. For more information on synthetic estimates, view our Local Uses of National and State Data Brief.

The 2016 NSCH reports four geographic variables for some states in the public use file: FIPSST (State of Residence), CBSAFP_YN (Core-Based Statistical Area Status), METRO_YN (Metropolitan Statistical Area Status), and MPC_YN (Metropolitan Principal City Status). More information about the geographic variables can be found in the U.S. Census Bureau’s Methodology Report.

How are DRC Indicator data sets different from the U.S. Census Bureau data files?  [return to top]

  • The DRC Indicator data sets include additional derived variables not available in the NSCH public use files which are available from the Census Bureau.
  • The public use files from the Census Bureau are available in SAS and Stata formats. The DRC provides the data file in SPSS format in addition to SAS and Stata.
  • Access to the DRC data sets significantly reduces the time and knowledge required to construct key indicators and advances the standardized use of these indicators in research, education, and policy.

What if I have additional questions?  [return to top]

If you have questions or need assistance, visit our site and ask us a question.